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Hello, my name is Ava from the United States. I am a high school student researching how hyperhidrosis affects the lives of patients. My interest in this subject is inspired by the fact that I suffer from hyperhidrosis and would like to communicate with an audience which shares my circumstances. All responses are completely anonymous.Thank you so much for your time. To take part in the survey click here or use the link below:
What is a Pro-Patient?
A patient/ friend or family member of a patient or patient advocate who takes on a leadership role in helping those with a medical condition.
What does a Pro-patient do?
A Pro-patient might organise support groups, advocate for individual patients and even advance treatments and help organise care by establishing and running professional organisations.
How do I get involved
Any Pro-patients out there? We’re looking to facilitate peer to peer and specialist to patient information exchange and support. www.health-shared.com was created to allow you to make and share content with the wider healthcare community.
Join us by signing up at www.health-shared.com
We have been experiencing some problems receiving messages from the Contact Us page over the last few weeks (End of September/early November 2019).
If you have recently sent a message but received no response, please would you complete the form on the Contact Us Page again.
Katie at TwoFour has got in touch with us about a new BBC Three series focusing on skin conditions. The show offers people the chance to see experts, possible treatment and to have a chat about their skin conditions.
If this is up your street and sounds like something you or a family member or friend may be interested in applying for please follow / pass on this link: https://b1.etribez.com/ag/twofour2/skin/welcome.html
A European study is looking at patients’ with skin diseases access to care and their needs. Hyperhidrosis is classes as a skin condition and we know access to care in the NHS in the UK varies according to where you live. Please read the message below and complete the short survey via the link below.
The Fondation René Touraine – FRT, is a European non-governmental, non-profit organization whose purpose is to support therapeutic
progress in dermatology through actions bringing together
dermatologists, scientists, pharmaceutical companies and health
authorities. The FRT is financially supported by the EADV – European
Academy of Dermatology and Venereology to conduct a qualitative study
about patients’ needs.
Therefore, we would need your opinion about the quality of care you received,
the access you have to verified information and also general information on a casual day with your
skin disease and on the unmet needs your encounter. The goal of this study
is to approach patients’ reality in todays’ healthcare system.
We have set up a secured link where you can answer our questions
anonymously. The data is collected and analyzed by the Fondation René
Thank you for your help!
The Fondation René Touraine’s Team
The Hyperhidrosis Priority Setting Partnership has surveyed more than 250 patients and clinicians, including nurses, GPs and dermatologists, to identify research priorities for the future. The results are now published and the top ten priorities are:
Read the press release here.
A TV production company are looking for patients with skin disorders, including hyperhidrosis which many people don’t think of as a skin disease. Details are in the flyer below.
Is something holding you back from getting active? Do you need help finding that motivation or advice? We have a top team that can give you that confidence to achieve your personal goals in 2019! New Year New You!
Our team of personal trainers hope to help promote body confidence to people from all backgrounds and situations who may have lost it or need some motivation to get themselves active again!
Contact: [email protected] with a brief introduction to yourself and a member of the team will be in touch to give you more information!
Can you help?
We are seeking patients for a new clinical trial into a novel treatment for primary axillary hyperhidrosis in Sutton Coldfield/Birmingham.
A new topical anticholinergic drug preparation (glycopyrrolate) is being trialled at an approved clinical trial centre based in Sutton Coldfield, Birmingham (West Midlands). Recruitment has started for the registration study and the investigators are seeking interested and motivated patients with primary axillary hyperhidrosis who live locally or who are willing to travel for regular visits (travel expenses will not be paid). Local ethical committee approval has been received for recruitment for the trial.
The study will be in two parts:
Phase I, which lasts for one month, is double-blinded.
Phase II is for an additional 16 months of using the active drug.
Men or women 18-65 with BMI 18-32
Axillary Hyperhidrosis with a HDSS score of 3 or 4
Females must be on effective contraception for at least 3 months before 1st dose, during study and at least 1 cycle post study.
Previous surgical treatment for Hyperhidrosis
Botulinum toxin treatment for Hyperhidrosis in the last 4 months
Active or clinical history of asthma or chronic bronchitis
If you wish to find out more about the clinical trial then please contact (tel: 0121 308 4373, email: [email protected]) for more information.